Prader-Willi Syndrome
DESCRIPTION
Challenges People with Prader- Willi Syndrome May Face
As you can see from the above video, people with Prader-Willi Syndrome have one major challenge. That challenge, is that no matter how much they eat, they can never feel full. This is a result of genes gone missing on chromosome 15.
As a result, people with Prader-Willi Syndrome have a high risk of obesity and other health issues such as heart and or respiratory failure. They are also often met with an IQ no higher than 80. This is 19 points below our country’s average AQ of 99.
Behaviours You May Or May Not See In Someone With PWS
Though much of the time, people with Prader-Willi Syndrome are cheerful and pleasant to talk to, you can imagine how frustrating it must be to go without food when you’re hungry. As a result, a common behaviour you’re likely to see from someone with Prader-Willi Syndrome is a temper tantrum. Temper tantrums can include crying, hitting, throwing items and yelling. They are a direct result of not being able to get food whenever they like.
HOW TO HELP THEM BE SUCCESSFUL AT CAMP
People with PWS enjoy talking and making friends! Below are some strategies and tips that you can use to ensure someone with Prader-Willi Syndrome has a memorable camp experience.
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Make a set schedule for snack/lunch time & stick to it!
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Facilitate interactions between your participant and other campers
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Redirect food talk to other preffered activities such as crafts and games
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In the event of a tantrum, keep calm and ask for help
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Create a bond with the camper - learn their likes and dislikes
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Do NOT provide more food than what the family has allowed
